Today was CF clinic. I was very excited because I had a lot of good news for my cf team, hoping with all these weekly blood tests I’ve been doing that they would have good news for me too. At first we had cops and firemen blocking our way to the underground parking and entrance,… Continue reading Orkambi: 6 Week Update

I’ve been nervous about today since I knew it was happening. January 28, 2019 my life would change forever. I did not make the decision to go on Orkambi lightly. I’ve been following the trials, I’ve been paying attention to my friends in the CF community who are on it, looking at the side effects,… Continue reading Orkambi Day 1

Family watched our boys while Abe and I headed to CF clinic on September 10th. I had many thing I wanted to remember to ask the doctor. We started with PFTs and my lung function went up! The last time I had real PFTs was before I got pregnant with Liam in April 2016, they… Continue reading Asking about weed and Orkambi

CF clinic It was a family event this time. The doctor and nurses loved it! My PFTs (Spirometry) were 89% back up to baseline from 79% when I was 4 months pregnant with Liam. My weight was up to 119 lbs. Everything looked so good that they postponed my lung X-ray and next appointment is… Continue reading Postpartum & CF

*Warning: for fellow CFers and moms this won’t be too graphic but for most everyone else it probably will. Read at your own risk.  First with some good news. Colby has yet to go below his birth weight and I’ve managed to gain after my after birth weight (I was 113 lbs and today was… Continue reading Recovery

Well I’ll start out by saying it exceeded all my expectations and what I learnt from Colby’s birth made a lot of difference for Liam’s.  So I’d been having days where Braxton hicks were really strong and consistent but not painful. Then on the morning of my last prenatal appointment I had a really strong… Continue reading Liam’s Birth Story

I keep on meaning to update the blog but then I think “well next week something else is happening so I’ll wait for that”. Well next week I’ll know the results of the GBS test and I can just update this post or make a new one **update** it was negative. Time for an update!… Continue reading 3rd Trimester Update

Well I’m 23 weeks and everything is going great! Ultrasound results came back normal and our little boy is a mover!  I’m measuring normal and I’ve gained 5 lbs so far (130 lbs) even though my appetite this whole time has been absolute crap. I do eat 3-5x a day but not near the amounts… Continue reading Gender Reveal

I was seriously scared considering how long it took to find the heartbeat.  First we heard movement and then finally that super fast sound you want to hear more then anything in the world. 140 bpm, similar to Colby’s first heartbeat we heard too.  No twins! I’m measuring normally fit a singleton. So very relieved… Continue reading Heartbeat 

So basically I’m done with blogger. But I have a lot of great content on my old blog so check it out. The only thing I’ll be copying over is my supplement list (on its own page). WordPress makes it a lot easier to blog so I hope to do so more often.